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Tribute to Barbara Head, Ph D, CHPN, ACSW, APHSW-C, FPCN

Dr. Barbara Head’s passion for education and our specialty of hospice and palliative care has helped to support, nurture, and strengthen so many social workers, nurses, physicians, chaplains, students, and other health professionals. We are all very grateful for her service. Barbara is currently receiving hospice care. Please join us in acknowledging the impact she has had on the lives of so many through your donation to honor her as a Florence Wald Champion. 

Barbara has been a lifelong champion for hospice and palliative care. Prior to entering academics, she worked at a large hospice program in Louisville, Kentucky, as a home care nurse, quality-improvement director, and staff/community education director. She has served as both a board member and president of the Hospice and Palliative Nurses Association (HPNA) and the Hospice and Palliative Credentialing Center (HPCC) and as a member of the Social Work Hospice and Palliative Care Network (SWHPN) Board of Directors. 

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SWHPN Highlights Former Board Members

We wanted to give a shout-out of recognition to several of SWHPN's Board members who are doing some amazing work!

Myra Glajchen, DSW, MSW, BSW, ACSW, APHSW-C

Dr. Myra Glajchen is the 2022 recipient of the Hyman J. Weiner Leadership Award. This award honors a member of the Society for Social Work Leadership in Health Care who possesses outstanding qualities as a teacher, scholar, advocate, change agent, and humorous and compassionate person. Candidates are selected for their demonstration of these qualities, as well as for their excellence in the advancement of the practice of social work in health care settings.

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Supporting the "Improve Access to Advance Care Planning Act", from the Billing and Reimbursement SIG

We are excited about the introduction of HR 8840/S4873 Improve Access to Advance Care Planning Act. We applaud Rep. Blumenauer, Sen. Collins, Sen. Warner, Sen. Collins and Sen. Klobuchar for proposing this bill.

This bill improves access to advance care planning (ACP) in multiple ways, and improved access is better for value-based health care. ACP conversations are important voluntary conversations that engage patients in sharing their values, goals, and preferences regarding future medical care. Advance care planning is associated with documentation of values and preferences, patient and surrogate satisfaction with communication, and positive surrogate outcomes such as caregiver burden and distress (1). Allowing for billing of ACP incentivizes the health care system to engage in this beneficial practice, and thus far these codes are considered somewhat underutilized.

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Town Hall for SWHPN Members - Join us!

SWHPN has been one of the leading voices challenging the ASWB's approach to discussing racism in testing for licensing social workers. We've done this through several official statements, as shared on our blog last month. What more should SWHPN be doing to address these issues? What additional actions would be helpful?

We would like to invite our members to join us on Friday, October 7, from 1-2 pm EST / 10 am-11 am PST for a member-only Town Hall Meeting. At this event, several SWHPN Board members will be leading a conversation discussing our actions challenging the ASWB’s latest report, and what additional work we are taking on to challenge racism in the hospice and palliative care field. We hope you can join us for this lively and engaging conversation, and help us become more involved
! To register for the Town Hall, click here.

APHSW-C Announces Transition to the Hospice and Palliative Credentialing Center (HPCC)

The Advanced Palliative and Social Work Certification Board of Directors is excited to announce the transition of the APHSW-C program to the Hospice and Palliative Credentialing Center (HPCC). The APHSW-C program will join the five hospice and palliative care programs within the HPCC certification portfolio. 

“Because hospice and palliative care are interprofessional and team-based, it only makes sense that the professions should join in their efforts to develop and maintain certification of the involved specialties,” said Barbara Head, PhD, CHPN, ACSW, FPCN, APHSW-C, a member of the APHSW Board of Directors. “I am excited about the synergy that will result when we join forces in this important endeavor.”

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SWHPN responds to McWhorter's NYT op-ed

We, the board members of the Social Work Hospice and Palliative Care Network (SWHPN) recently made a statement in response to the demographic data released by the Association of the Social Work Boards (ASWB). We noted our concern about the inevitable inherent racial bias embedded in the exam. Representing an organization of social workers working to bring humanity to serious illness and end-of-life care, we continue to reflect on ways to challenge the systems that deny and defy the basic humanity in all of us. It is in this endeavor that we respond to the recent New York Times opinion piece written by John McWhorter

In his opinion piece, Mr. McWhorter takes issue with the protest against the ASWB exam as racist. He points to the petition on Change.org and derides it for not sufficiently explaining why the tests are racist. Whether or not you believe the assertion that the test is racist depends on whether or not you believe the educational system in the United States, from preschool to graduate school, is embedded in a racist system and is infused with racist practices. There has been sufficient research data that support the fact that there are “categorical inequalities between Black and white students” in disciplinary policies, access to advanced courses, assignment to gifted and talented and special needs programs, and in practices of racialized tracking. The truth is that 68 years since the US Supreme Court ruling in Brown v Board of Education, high levels of racial and economic segregation persist in most metropolitan areas and with it, disparities in education. 

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SWHPN's statement in response to the ASWB report

The Social Work and Hospice Care Network (SWHPN) is compelled to issue this statement in response to the demographic data released by the Association of Social Work Boards (ASWB) on the racial composition of social workers passing the licensure exams.

SWHPN applauds the dissemination of this important data, and we are deeply troubled by it. We, like many social work organizations during the past few years, have proclaimed our outrage at the structures of white privilege and our commitment to racial justice in our profession and the larger society. It is in this context that we express profound alarm and dismay at learning of the low pass rates of our Black colleagues on the licensure exams. We believe that this data is the product of the implicit racial bias embedded in the ASWB exam -- a bias that is pernicious and pervasive throughout the education and practice institutions of the United States. Immeasurable injury is exacted to our profession when the ASWB exams prescribe ideas of a "knowledge" that is steeped in dominant white cultural values and ways of knowing. There are no tools of racism and colonialism more powerful than pedagogy and epistemology. SWHPN refuses to remain complicit in perpetuating such systems of racism. To that end, we commit ourselves to the following actions:

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Update on SWHPN's anti-racism work

Hello SWHPN Members! On behalf of the SWHPN Board and staff, we hope you are enjoying a relaxing and safe summer. At the 2022 Conference, we extended our commitment to enhanced communications and transparency with our members. We hope you have enjoyed the new monthly Membership newsletter which came out last week, as well as our first Advocacy and Policy newsletter.  It was developed in conjunction with several Board members, and is generously supported by Healthsperian, a Washington DC-based company that provides healthcare advocacy on behalf of non-profits across the country; they are providing this to SWHPN free of charge to help our members stay abreast of policy issues that may impact our field, and have been supporters of SWHPN conferences for a number of years.

Additionally, we are working to write more regular blog posts, to provide more opportunities to gather feedback from members, and to develop new member benefits, including leadership and professional development opportunities. We also want to make sure our members stay up-to-date on what is happening behind the scenes with the Board and staff as we take on our own development to transform the organization into an anti-racist, inclusive space. 

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SWHPN Statement on SCOTUS Dobbs v. Jackson Ruling

SWHPN Statement on SCOTUS Dobbs v. Jackson Ruling

The Social Work Hospice and Palliative Care Network (SWHPN) is outraged and profoundly disappointed at the decision released on Friday, June 24 by the Supreme Court of the United States in the Dobbs vs Jackson ruling. This decision not only becomes the first Supreme Court decision to take away recognized individual liberty by ignoring stare decisis, it also places many people’s, and in particular, women’s autonomy lives, and well-being in jeopardy.  It conflicts with the Social Work Code of Ethics by interfering with social workers’ commitment to the dignity and worth of every person, and people’s rights to self-determination, especially over their bodies. Bodily integrity and autonomy are cornerstones for liberty within our society. We anticipate that those who have been historically marginalized and excluded within our society will suffer greatly, and disproportionately, from this decision. We will remain vigilant and encourage our members to work for unfettered access to high-quality health care for every person in our country. Social workers will stand firm in our commitment to social justice, access to quality healthcare, including reproductive health, and the right of every person to self-determination and liberty. 

SWHPN Board Welcomes New Executive Officers

On April 1, 2022, the Social Work Hospice and Palliative Care Network (SWHPN) welcomed new leaders from its current Board members as Executive Officers of the organization. 

Anne Kelemen, LICSW, APHSW-C is the organization's new Chair, having served the past year as Vice-Chair. Danielle Jonas, MSW, LCSW is the organization’s new Vice-Chair, Caitlin Scanlon, MSW, LCSW is the new Secretary, and Tanisha Bowman, MSW, LSW, APHSW-C, CGP, NEDA Proficient is the new Treasurer. Stacy S. Remke, MSW, LICSW, APHSW-C will transition from Chair to Immediate Past Chair. Terms will run through March 31, 2023. 

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A note from the 2022 SWHPN Executive Committee

Dear Members,

We are thrilled to welcome you to the 2022 SWHPN Annual Assembly in Santa Fe, New Mexico. It’s so nice to finally meet in person and we hope you enjoy your time connecting with colleagues you haven’t seen since 2019. 

It’s been an unprecedented two years with the pandemic, murders of Ahmaud Arbery, Breonna Taylor, George Floyd and too many other Black and Brown people, social unrest, and the war in the Ukraine. In reflecting on this year’s theme, “Looking forward & back: celebrating our history and the future of hospice and palliative care social work,” we’re struck by the word “celebrate.” While there is a lot that we are proud of in this field, and proud 
of SWHPN as an organization, it’s a difficult time to “celebrate” when we are aware of our roots in white supremacy and anti-Blackness. As an organization, SWHPN is dedicated to cultivating a sustainable community rooted in belonging and justice. An important part of this is to own our past and move through a period of disruption and discomfort. To develop new ways of working to ensure we do not perpetuate harm to historically marginalized and excluded communities, including our colleagues in hospice and palliative care. 

In Alicia Elliott’s memoir, A Mind Spread Out on the Ground, Elliott, a Mohawk writer, reflects on her childhood growing up on a reservation in Ontario, Canada:

“Perhaps one day this neighborhood, this city, this country will finally hear its neglected past whispering. Look at me plainly. Look at me. Look at your patterns. Don’t make the same mistakes. Don’t hide who you were. Acknowledge it, then make something new, something beautiful, something that will make everyone proud.” (Elliott, Pg. 57)

SWHPN is in the process of reflecting on its patterns, its history – so we can acknowledge where we have colluded with oppressive structures, so we can stop making the same mistakes, and make something new.  We have committed the human and financial resources necessary to help us identify our patterns and plan for a more equitable future. As the history of systemic racism and oppression within the medical system begins to be acknowledged and addressed, we as social workers need to look at ourselves as individuals and at social work as a profession. As a profession that is rooted in “nice” whiteness, we need to question its role in proliferating power structures and imagine a new future. In 2022-2023 and beyond, my hope for SWHPN, to borrow from Elliott’s words, is that we not only “hear the neglected past whispers” but actively work to turn whispers into trumpets to address systemic racism. 

Acknowledge the neglected whispers of the past
Make something new
Something beautiful 
Something that will make everyone proud (A. Elliott)

We look forward to seeing what SWHPN will create together, in 2022 and for many more years. Jessica Strong, Executive Director, will share more about these exciting updates. 

SWHPN Executive Committee:
Anne Kelemen, LICSW, APHSW-C, Chair 
Danielle Jonas, LCSW, Vice Chair
Caitlin Scanlon, LCSW, Secretary/Treasurer 
Stacy Remke, LICSW, APHSW-C, Past Chair 

Advocacy Opportunity: Improving Access to Mental Health Act (S 870/HR 2035)

In March of 2021, the Improving Access to Mental Health Act of 2021 was introduced in the House. This bipartisan bill, co-sponsored by Senator Debbie Stabenow (D-MI), Senator John Barrasso (R-WY), and Representative Barbara Lee, MSW (D-CA), will address gaps in services that Clinical Social Workers are able to provide under current law. 

There are 42 cosponsors in the House and 5 in the Senate. Per the NASW advocacy alert, we need at least 175 cosponsors in the House and over 50 in the Senate to demonstrate broad support for this bill and elevate it to potential consideration. It is anticipated that this might be a topic of focus in the coming months due to a recent request from the Senate Finance Committeeabout concerns that every American should be able to access high-quality behavioral health care when needed. 

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Political Palliative Care: Opportunities for Advocacy to Transform Palliative Care

Finding time to keep updated on pending palliative care legislation can be a challenge for busy palliative care practitioners. However, political advocacy work is as important as direct care work, and in some instances, may have the potential to improve lives and decrease suffering on a much larger scale. There is an urgent need to improve equitable access for all people who could benefit from palliative care, especially those who have been unfairly impacted by systemic racism and other forms of oppression in health care. This type of change will require some changes in public policy and laws. The palliative care community can work together to influence these changes through increasing engagement in political palliative care practice. 

Political palliative care is not partisanPolicy advocates view frontline healthcare professionals as important potential contributors for political action and advocacy due to their unique knowledge, proximity, and insight into the lives of the patients they care for. For patients with complex long-term healthcare needs, such as those served in palliative care, this type of practitioner advocacy can help communicate the perspective of a population of patients who may not be as well-equipped to communicate their experiences barriers to care and unmet needs.

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Attention Hospice and Palliative Care Social Workers: There is a need for your voice!

The Congressional Social Determinants of Health (SDOH) Caucus is a bipartisan effort of lawmakers started in July of 2021 to improve approaches for addressing health disparities experienced by persons disproportionately impacted by SDOH and improve well-being. In this effort, the Caucus is seeking comments and feedback from the public on challenges and opportunities related to SDOH by September 21, 2021.  

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Strategies for Avoiding Empathy Fatigue and Developing Emotional Resiliency During the Pandemic

The Social Work Hospice and Palliative Care Network (SWHPN) applauds the recent decision by the FDA to approve the Pfizer vaccine, Comirnaty, for protection from COVID-19 for people aged 16 and older. The alarming rise in COVID-19 cases over the past several weeks due to the Delta variant is a stark reminder of the serious health threat the virus poses, particularly for the elderly, individuals with underlying medical conditions, and children that cannot yet be vaccinated.

SWHPN strongly encourages all social workers in hospice and palliative care settings to be vaccinated against COVID-19 to protect themselves, their coworkers, their patients, and their families. COVID-19 vaccines are safe and highly effective at mitigating the risk of infection, especially when paired with other scientifically-backed measures like frequent hand washing and mask-wearing. Vaccinated individuals are protecting themselves by reducing the spread of the virus. All SWHPN Staff members are fully vaccinated.

We also know that there are many reasons some people may have for their vaccine hesitancy, including historical health abuses due to race and gender, lack of paid time off, lack of childcare, and disinformation campaigns on television and social media. There are also people who are unable to take the vaccine due to pre-existing conditions, and yet will be safer as more people are vaccinated. We strongly encourage social workers to take steps to enhance vaccine access for everyone, to ensure we achieve the goal of herd immunity as quickly as possible. 

Finally, we know that navigating ERs and ICUs that are filling with patients that need critical medical support, tending to families that cannot visit in-person, and helping hospital colleagues that are fatigued and stressed can lead to empathy fatigue. We hope that you are finding ways to build up your own reservoir of emotional resilience and taking breaks when you can to recharge.
If you are looking for ideas, or have some tried-and-true tips to share, we invite you to join us for our next CE webinar, an interactive conversation on Tuesday, September 14 at 5 pm EST / 2 pm PST, “Strategies for Avoiding Empathy Fatigue and Developing Emotional Resiliency During the Pandemic.” Registration is here. Current SWHPN Members can attend free of charge. 
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Professional Development and Leadership for Palliative & Hospice Social Workers: Report on the APHSW Certification Program

Since the APHSW-C Program started in 2019, approximately 500 social workers have become APHSW-C! We had an incredible start for the first exam periods. The pandemic has made things more difficult with limited test sites since last winter/spring. However, now most test sites are open and ready to provide exams.

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SWHPN Strategic Engagement Committee Update: Building Connections & Advancing Social Work in HAPC

Beginning this week, SWHPN will begin posting weekly updates from our committees, to highlight the important work each is doing to help advance the organization’s mission. This series is being launched by our Strategic Engagement committee, and the following was written by Jennifer Hirsch, LMSW and PhD candidate.

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SWHPN Receives Grant from ANF to Develop Grief Resources

To help address complex trauma resulting from the COVID-19 pandemic, five leading organizations are collaborating to offer free innovative resources for frontline providers on grief education. The Hospice and Palliative Nurses Foundation (HPNF), the Hospice and Palliative Nurses Association (HPNA), the Social Work Hospice and Palliative Care Network (SWHPN), the Association of Professional Chaplains (APC), and the Oncology Nursing Society (ONS) have received a grant from the American Nurses Foundation (ANF) to produce Dealing with GRIEF: A Series of 5 Short, Powerful Videos.

Caring for the physical, emotional, psychological, and spiritual needs of patients and their families is a demanding vocation in typical times, and this initiative aims to provide timely and practical information during an unprecedented time. Research has also shown that a significant number of frontline providers, at all levels, exhibit secondary traumatic stress, bereavement, compassion fatigue, and burnout.

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SWHPN Announces Seven New Board Members

SWHPN held elections for its Board of Directors in March 2021 and is excited to announce the addition of seven new members. Read the full press release here.

Tanisha Bowman, MSW, LSW, APHSW-C, a native of the Northern Virginia area, first attended Northern Virginia Community College where she earned her associate's degree in social science with a Deaf specialization, as well as a career studies certificate in American Sign Language. She then went on to graduate in May 2015 from George Mason University with her BSW. Following her graduation from GMU, Tanisha moved to Pittsburgh where she earned her MSW at the University of Pittsburgh, graduating in December of 2016. After graduation, Tanisha completed a Death and Dying fellowship through the Jewish Healthcare Foundation and accepted a position at UPMC as an ICU social worker. Tanisha currently works as a supportive and palliative care social worker at UPMC Presbyterian Shadyside where she is a member of the palliative care section’s anti-racism and social justice committee. 
Tanisha brings with her 5 years of board experience as a former NASW state chapter board member, has multiple race in social work and race in medicine presentations under her belt, and can often be found engaging in various threads within the medical, social work, and hospice and palliative Twitter communities. In her spare time, Tanisha sews her own clothes and gets lots of hugs from her 10-month-old baby girl.

Lori Eckel, LCSW, APHSW-C is the lead palliative care social worker and the senior ethics consultant at Legacy Health.  She received her MSW from Portland State University School of Social Work, completed advanced clinical training in palliative care from Smith School of Social Work, and completed the Zelda Foster Palliative Care Leadership Fellowship at NYU School of Social Work. Lori currently serves as an adviser and mentor for participants in both the Smith and NYU’s Zelda Foster programs. Her palliative care clinical social work has been focused in critical care and oncology and she has worked in both inpatient and outpatient settings. She serves on the Editorial Board for the Journal of Social Work in End of Life and Palliative Care.  In her ethics role, she oversees the ethics consultation service, co-leads review and development of ethically relevant institutional policies, and supports the continuing ethics education activities at Legacy Health. Lori appreciates opportunities to contribute to the well-being of health professionals, teaching students, and mentoring others in the field of palliative care. She has presented locally and nationally on topics related to advance care planning, moral distress, and ethical dimensions of end-of-life care.

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SWHPN Statement Against Anti-Asian Racism

In continuing with our work to speak up and challenge social injustice, SWHPN is issuing this statement condemning the hateful attacks against Asians, Asian-Americans, and Pacific Islanders. We have seen a rise in verbal and physical violence in cities across the United States because of anti-Asian racism following the COVID-19 pandemic (Ruiz, Horowitz, Tamir, 2020; Jeung, Yellow Horse, Popovic, Lin, 2021). In the murders of Korean-Americans on March 16th in Atlanta, we saw the twin biases of sexism and racism that Asian women, in particular, have been victims of in our societal structure of white patriarchy. Affirming our social work values, we explicitly reject all forms of racism, xenophobia, and nativism, and stand with our Asian-American victims of violence and hate. By doing so, we also acknowledge that the struggles of Asian-Americans are inextricably linked with other BIPOC communities in a common endeavor for the humanity of this country. We uphold the inherent dignity and worth of each person and challenge others to join us in working against anti-Asian violence.

We recognize that our statement must be followed with action. Understanding our positionality and respecting the vanguard role of the Asian-American community, we want to use this opportunity to highlight the work being done by our Asian American Social Workers, and advocacy groups like Asian Americans Advancing Justice and Stop AAPI Hate (@stopAAPIHate on Twitter). The Atlanta branch of the Asian Americans Advancing Justice released a very powerful statement earlier today that we encourage you to read, and amplify and donate if possible. The Chicago branch is holding a series of bystander intervention trainings during April that SWHPN staff will be participating in, and we encourage you to sign up (also available here, through ihollaback.org).

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